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July 28, 2006

It Rained Last Night

I was thinking of calling Noah. Read more. And this was posted last night. I don't know what the News-Herald has to say about it today because we didn't get a paper this morning. And there is no answer at the News-Herald this morning.

Merry has her appointment at the Clinic this morning. Gloria was going to go with her but she got stranded at a friend's house last night and couldn't even get home this morning. So we rearranged and Merry was going to come and get me, but 615, 306, Munson and Lost Nation are all closed. She couldn't reach me and I can 't get to work.

The good news is that we are fine and dry. Merry's back yard is a lake and Cindy has 3 inches in her basement. Well, okay, that isn't so good, but we are fine. I will try to go in to work in about an hour.

July 24, 2006

Nathan visited us

Okay, here is the test to see what kind of a student I really am.  If you don't see any photos, go to my flickr page (no, I don't know the address) to see these, or whatever you can't see here.

Nathan came to visit.  Here is proof.  He is sitting on the bench outside the back door.  He is wearing (only one of because I wasn't quite finished with the other one) one of his new socks.

Okay, for some reason I can't quite understand, I can only put one photo up here.  This thing (window) keeps disappearing behind Flock.  And I can't get the text to go below the photo.  So I might just return to Movable Type.  More later, I'm going to bed.

July 22, 2006

Another test

Okay, Nathan has shown me how to use Flock to upload photos to Flickr, which I did. If you would like to see them, go here. Have fun, and forgive the dupes. Now the real test is, will I remember tomorrow just how I did this? If so, then watch for garden photos, knitting photos, roadtrip photos... Or, just watch out!

Test

Well, visits with Nathan are always an adventure! Here is a new one for me; it's called Flock. I am just learning how to use it.

July 17, 2006

I'm Changing the Subject

Here are some photos from the 4th of July, that I promised weeks ago! Daddy had to work, so Rae and I went over to Gloria's house for a get-together.

Colorado River.jpg

Oops! Here is one more photo from our Grand Canyon Trip. It is from the Navajo Bridge at one end of the canyon, close to Lee's Ferry. Impressive, no?

 Rae July 4.jpg
And here's my Rae-rae! With me! In a skirt she made just the day before! And do I have enough pairs of glasses?!?!

Goofy Women's Center Staff.jpg
Here is the whole Women's Center staff -- well, almost. One of our students is missing and Terry (in the orange in the back, next to Merry) did volunteer in the Women's Center a few months back, but is not a part of the staff. Just a good friend.

Knitting, as usual.jpg
And here I am, in Gloria's back yard, working on Mara's sock. Yes, this should be waiting for you when you get back to Haifa. Or arriving shortly after you do.

July 15, 2006

The Woods

Here is why it doesn't feel like a rush of victory:
"Carcinoma of the pancreas has a markedly increased incidence over the past
several decades and ranks as the fouth leading cause of cancer death in the
United States. Cancer of the exocrine pancreas (which is what I have) is rarely curable and has an overall survival rate of <4%. The highest cure rate occurs if the tumor is truly localized to the pancreas (which mine was not); however this stage of the disease accounts for <20% of cases. For those patients with localized disease and small cancers (<2cm -- not me) with no lymph node metastases (again, not me) and no extension beyond the capsule of the pancreas (again, not me) complete surgical resection can yeild actuarial 5-year survival rates of 18 to 24% (and even if I did fit this profile, that still ain't so great.)
Source

We're not out of the woods yet, folks, though I celebrate each day this side of the dirt.

I tried to post this as a comment, but couldn't. I didn't mean to give it the importance of a post.

July 14, 2006

Today

I know, I should be in bed. I have to go to work tomorrow. But, Daddy is working and I always have trouble going to bed alone. In the dark.

Well, I noticed a difference today. When people asked me 'How are you?', I didn't feel like a fraud when I said, 'Fine.' That is a big improvement. I sort of feel like I have been waiting to exhale, and now, I sort of can. Only a little bit, not a full breath. I think this is going to take some getting used to. I have been a cancer patient for 8 months now. Now I need to learn how to be a cancer survivor. I hope.

July 12, 2006

The News

Well, first of all, the news is good. My scan is the new baseline against which the doctors will compare future scans. It appears to be clear. There is soft tissue that has filled in where the tumor was. This is the norm. They will watch this and see if anything develops there. My white blood cells (absolute neutrophil count) is up some, but not where they would like to see them. They will keep an eye on that. So, here is the plan: In two months I will go back for blood tests. In four months I will go back for another scan. We will continue this pattern until something changes, if for the good, we may discontinue, if not so good, do something else, like more tests. I will have no more chemo, pretty much no matter what.

Now what we do is wait. It is a bit tense, to wait for three and a half years, but then is when I will be officially declared "clear", assuming I make it that far, and that is assuming a lot. I find that I have to sort of rethink my approach to life. I thought I was trying to learn to live with cancer, but now I think perhaps I was busy trying to die well, so to speak. Now I have to think slightly, but not too far, more long term. For example: I have been busy knitting socks. For everyone. I wanted to have each of you have a pair of handknit socks to remember me by. (How weird is that?!) Well, now I think I can think of some larger projects, maybe. And things like what to do with Mensch's room take on a different light too. BC (before cancer), I wanted to redo it into a craft room/guest room. Then it didn't make sense if I wasn't going to live to do any sewing or whatever. Now, it makes more sense again. I went to the eye doctor and got a new prescription. I waited until today's appointment before ordering my glasses. Actually, I haven't ordered them yet, but I have decided to get the more expensive progressive lenses. It's a cost/benefit thing.

Anyway, I thought I would be elated, thrilled with the news and I find that I am not. I just feel sort of flat. But, just as I had to get used to the idea of having cancer and facing the end of my life, so I will have to get used to, maybe, having my life back, at least for a while.

Is this the time to mention our discussion of 'What if'? I had to ask, of course. The answer was that basically, if the cancer comes back, there is nothing, except perhaps a drug trial, that can be done to extend my life. There are pallative measures that can make me more comfortable, but that's all. The main reason they will continue to do the scans is for my peace of mind and to inform my decisions.

July 7, 2006

Today is a all we ever have

Today is a momentous day, a day of testing, and yet, just another day. I go for my first post-op scan today. I started this morning with a barium cocktail, not too bad, slight citrus taste, a bit fizzy, I think. I take another one in one more hour. I set the timer so I don't forget, or miss it.

Then, at 8:30 Daddy and Rae and I will trundle off to the Clinic center in Willoughby for the scan. It isn't much, and, in itself, is not worrisome. I will change into a gown and they will inject more dye into me. Then for about 20 minutes I will lie on a cold, hard, narrow table while a huge piece of machinary spirals around me, taking images. I will be excused, will redress and leave, to go on with my day. I have to stop and get some groceries (don't let me forget to put TP on the list), come home and eat breakfast. (No, the barium cocktail doesn't really count as breakfast. I want some real food.)

And so life will go on as normal. Daddy is working this weekend, Rae has a wedding to go to on Saturday, Cindy and I are going on our road trip. But my mind will be spinning, wondering what they will find. And not being happy with whatever the results are. If they find something, I won't be surprised, but I will be very sad. It will make certain what I have feared since first receiving my diagnosis. If the scan shows nothing, I am afraid that I will fear that it is just a matter of time. It will be nice to know the time is a bit longer, but . . . It just seems to raise even more questions. When will the other shoe fall? How much longer?

I really am trying to life my life one day at a time. Frankly, this test (and the whole doctor scene) gets in the way of that.

On a lighter note, Daddy, Rae and I rode our bikes down to St. John Vianney's for their festival last night. I went to the kitchen to see Bev Martino. She is well and it was so nice to see her. We had a good time. Rae and I went down the big slide together. You have to climb up a rope net to get to the top and then they give you a potato sack to make you slide faster. Rae went faster, but I went farther. This is me living in the moment! And I will have pictures from our weekend to post.